Early Onset Alzheimers Signs – Early-Onset Alzheimer’s Is Skyrocketing

Video Transcript

welcome to intrinsic motivation from a homies perspective podcast where we meet experts from all walks of life to learn their intrinsic motivations so that they can share it with the world what do we have in store today stay tuned to find out more good morning good evening good afternoon and everybody out there in podcast land you are in tuned to another episode of intrinsic motivation from a homeys perspective this is Hamza and I am gaming and today we have a alum of Georgia Tech go Hornets and Yellowjackets all that good stuff and he’s going to talk about Alzheimer’s disease he was working with the st. Petersburg Times before publishing his own magazine and at the time it city his 50 year old wife was his dear old wife Martha was diagnosed with Alzheimer’s back in 97 his children were still school aids in high school in college and so he’s going to talk a little bit about early on-site all the early onset Alzheimer’s and what you can do to actually navigate through those waters give us a little bit more information about that I’m really excited because this is something that most people aren’t prepared for so any information that we can get beforehand for preparation in case that happens I think all the better without further adue like the Welcome Karlin Maddux to the podcast welcome carlines Thank You Hamza thank you David go to the top when you tried to be here tonight yeah I think you’re joining us yes you’re welcome they just pick up on what you were saying Hamza my wife was diagnosed with early onset at age 50 I was I was 52 at the time we hadn’t even thought about I didn’t even know what Alzheimer’s was I may have heard of it but certainly was not on not on my horizon for anything news coming on and but it’s just the the just without boring on statistics the numbers out there are really sort of depressing I mean Alzheimer’s right now he seems to be growing in epidemic proportions there’s about 22 million people about about 5 to 6 million who are living with Alzheimer’s itself but then the rest of that 22 million are caregivers for those 6 million and of that total number I would I would guess educated guess that we’re talking about people young people I’m saying 50 and under with Alzheimer’s would be two to three hundred thousand right now and that’s just unimaginable I mean you don’t even think of somebody in their 30s 40s and 50s the youngest I’ve heard so far as I’ve been speaking and reading and talking came across one young man who was in his 30s with Alzheimer’s disease incredible whoa yeah whoa and so it’s not something that’s front of mind as you’ve got young families or you’re single and you worried about a job and whatever else and who you’re going to hook up with or whatever else it’s not something in front of mine but there’s there right now there is no medical solution to Alzheimer’s they’re finding medical solutions to some aspects of cancer some aspects of heart disease but right now they have not found any way to diminish the rate of growth of Alzheimer’s disease and as I’m reading more and more the thing I keep hearing about Alzheimer’s is the same thing that you’ll hear about if you want to have good health if you want to have a good heart if you want to have just keep yourself in good shape you just get the exercise be eating right sleeping right and the like but that’s about the extent of what’s out there right now and I am I know means I am by no means an expert medical doctor or the like or any kind of a counselor I’m just coming from we lived with this for 17 years and our in our family and so you obviously learn a lot and have to deal with a whole lot as you’re going through that kind of experience absolutely and thanks for for the introduction for that because I’m I’m wondering you know it’s at 17 years or you’re always going to continue to learn and looking back I think everyone always wants to know signs and traditionally like you said there’s a difference between Alzheimer’s and early onset Alzheimer’s and the numbers are growing for early onset Alzheimer’s so were there any indicators that looking back like oh wow it was sure surely going to happen to your spouse well I don’t know about surely going to happen there were questions raised the most significant thing for me it was a year before Martha was diagnosed with Alzheimer’s she was running for us an open seat in the Florida State Legislature Martha been very active and actively involved in politics and civic activities she’d been on the City Council here in st. Petersburg Florida back in the 80s and so it was in 96 that she was running for this part of state legislative seat and there was one event where Martha and the three other candidates for this seat were speaking to a group called the tiger Bay Club and this was the most significant event during the whole campaign and the format is audience members would ask a question and each of the candidates had to respond and I’ve seen Martha in scores of situations like this where previously she’d been very direct very responsive and just gave very common-sense answers but on this day and July 96 Martha had to ask for every question to be repeated and when she responded her answers were the mark just a bit I didn’t know what was going on and when we got home I said Martha what happened out there because I in hindsight I think the way she mishandled that event cost her her prime cost her of the election she loved but she lost by 20 votes but I asked Martha what was going on and she said she was clueless she said what do you talking about everything was just fine and so that raised a lot of questions and I and our children began to notice that Martha was forgetting names more frequently and forgetting appointments and so we got Martha into a doctor about a year after that in September of 97 to get tested and it was later met Bob that we got the diagnosis I like to get I mean we’re going to dive into all the minutiae and everything but I want to kind of play time travel or if you will with 96 and it’s not as 2018 I’m sure you’ve seen a lot in and there’s no medical solution so and then the numbers continue to grow I’m just wondering as far as indicators would someone in 2018 if the numbers are growing you know are there other things that because if we have to go by forgetting names or numbers we all do that right exceptional this is exceptional for Marth in terms of the number the number forget the amount of forgetting and just I mean if you’re if you’re in politics you don’t forget names you need and you keep your appointments Andrew and so very much that in terms of you’re talking about where are we today as opposed to 96 right the one of the main things today is there is a lot more good information out there online in books support groups the medical community is much more aware I think of the kind of symptoms I was talking to Martha’s neurologist recently and just and he was just talking about how important it was just to get a good clear diagnosis and he just gave an example he said that a patient came in to him who had been diagnosed by someone who wasn’t specialized in in the field they had been diagnosed with having Alzheimer’s and so his wife was already getting him lined up for a nursing home and whatever else and he said when I went through his diagnosis it was clear to me that he didn’t have Alzheimer’s she had some symptoms syndra to it but he did not have Alzheimer’s I don’t know what the man actually had but he said we were able to clear up his problems real quick and so it’s just very important if you know if you’re just really really fearful and wondering and family members are wondering it’s just important to go in and get with a neurologist or a good gerontologist who knows the fields and knows the aspects of Alzheimer’s because I don’t know if it can do it today back in 96 they could not actually diagnose Alzheimer’s they had to do it by process of elimination and they would give Martha they gave Martha different kinds of tests and is it depression is it a thyroid this year is it and went down several different things and checked off no it’s not this not that not that phone to think you can be there this early onset Alzheimer’s early onset if a person doesn’t know that means anyone who’s diagnosed was under 65 early early onset are we still there Hafsah getting some mini I’m here I’m checking if it’s if it’s David can you hear how America met appearance I’m sorry I just said John McCone keep going okay all right so we’re so saying early onset Alzheimer’s is anyone diagnosed with the disease who’s under the age of 65 and for somebody’s and their forties 65 seems pretty old but still at the same time what’s causing a lot of the growth in this disease are the is my baby boomer generation that is just rushing into retirement and it’s a huge bulge in the population as you all know and so there’s just a lot of people going into 65 and older which is where the majority of the disease shows up in that age group my push back to that Colin is that while the numbers continue to grow in you’re right with the baby boomers the the numbers at least online by 2050 the numbers are expected to double so that would go into you know David and I you know Generation Xers and running into that and so you know we don’t we don’t have the population that the baby boomers have yet Alzheimer’s is expected to continue to grow and get more severe I’m not happy it’s not a matter of pushback I think what’s happening as rapidly as this disease seems to be growing my gut feeling is that the fear of it is growing even faster and people are becoming even more at into it and and as you well know fear but get stress and stress forgets fear and I can’t I cannot tell you what caused Martha’s Alzheimer’s but there were several issues of stress that I was discovering as we were going through this that I just had not really been addressed by Martha and so it’s just very important to to keep us clear ahead and there’s and keep your life – stress-free as possible I guess one of the big eye opening things for me as I was living through this with Martha I grew up thinking that illnesses and diseases were only a physical issue that had to be dealt with as such you need to take this medicine or you need this kind of surgery or whatever but it is very clear to me that also in addition to the physical an issue like Alzheimer’s but I think almost any kind of crisis particularly health crisis it’s embedded with emotional psychological spiritual issues that just really need to be recognized and dealt with as best we can and I’m talking about issues I’m talking about our depression anxiety just a long-term resentment anger guilt certainty stigma that’s associated with mental disabilities like Alzheimer’s all these things I usually in the past would just sort of ignore them and keep pushing ahead but they really need to be addressed someway getting with a good counselor or good spiritual mentor or someone that you have complex on and and just work through some of these things and just get them out of your system as best you can clothing was there any history within her family of like anyone else Jean oh uh not not prior to Martha being diagnosed with this after the fact after Martha was diagnosed with it turns out her her mother’s brother developed Alzheimer’s and her mother developed a form of dementia I don’t think it was all science but they were in there let me put this together they were in their 70s and 80s when they developed it there is a there is a gene that they have identified as being associated with Alzheimer’s something called apoe4 I don’t know what that means but we had we had Martha tested for that and she did not have that gene so it’s not a it’s not an automatic thing that if you’ve got the gene you’re going to get Alzheimer’s or if you don’t have the gene you’re not or get Alzheimer’s but apparently that gene genetic structure it makes it a little bit more conducive who Philippe ask you about you I want to go back to stress because you had mentioned that your wife Martha she was active in politics and as we grow in our careers and get more responsibilities and such there is some associated stress with it do you think I mean this was probably going to be the most important seat legislatively seat in her life do you think the additional perceived stress was a trigger in terms of running for this office worried no I mean I Martha had run several campaigns she had run the local office for President Jimmy Carter’s first campaign of the local office down here and then went on and ran some state campaigns and local campaigns as well as her own for the City Council that wasn’t instant much Martha Martha had some issues whether a father that had just gone on pretty much her whole adult life and just never had addressed these never had addressed them except in angry outbursts and stuff and just and I guess that’s what I’m talking about in terms of the resentment I mean I just I’d always a grew up in a Christian home whatever kind of a faith anybody comes from forgiveness is an issue that usually as part of most most kinds of faith and just being civil and I thought that forgiveness was nice virtue that you could get around to should get around to at some point whenever it is convenient I just didn’t I just become much more acutely aware of just how self-destructive Karen was Emma can be and I think that was certainly an ingredient in terms of Martha stress I mean did was she Martha Martha’s energy level was twice mine and she was always on the move and so she didn’t take time to just be quiet and still and reflective and whatever think all of us need to do it different intervals in our lives I mean having three kids and being involved like that and I I had a magazine I was an entrepreneurial magazine publisher trying to get magazine off the ground here and the Tampa Bay area just it was it was very hard to count of a lifestyle so that could very well been a contributing factor as well but I just I just don’t know let me ask you I want to reset let’s do a reset if you will kind of play the game with me because and well first of all let me say for the record I don’t have children but for this conversation I do want to say that most kids coming up today at their er they have every minute of their waking hours accounted for right they have the play dates they have and they’re they don’t lay on their back and out in the backyard and watch the clouds go by or watch clouds form or they don’t have that free time and so you’re saying if we’re running the body’s going to give up on us at some point and hopefully later than sooner but we’re coming out of the wound today with that type of hectic lifestyle absolutely the the culture that we’re in right now just doesn’t permit much downtime at all I mean not just for kids for adults in terms of the pressure to make a living and the pressure to feed your peers and the live can is it’s important to be with your friends and the like but it’s also just very important to take some time to be quiet I mean one of the things that Martha and I learned as we were honest after her diagnosis tastic none of the kentucky that we visited with for a week just said we might want to check out meditation and this was in 1997 so meditation or strictly Transcendental Meditation been around since the seventies so that wasn’t a new concept but neither one of us had practice that of just being quiet for fifteen to twenty minutes in the morning fifteen to twenty minutes in the evening and just doing whatever the concept of meditation is we were repeating a word or a mattress just for that period of time what happened with us there was nothing magical about it but just over time I began the sense that Martha was becoming less anxious she was just showing herself to be more relaxed I certainly was thinking that as well so I considered that to be very important very critical as we were going through the 17 year Odyssey in with meditation like any exercise you start out and you’re like whoa how do I calm this monkey mind and you come to a point like I said with transcendence did the meditation sessions start to grow over those 17 years you mean growing length or what yes growingly no I’ve kept it I mean we were following the the the tradition of a certain Benedictine monk who’s just suggesting if his whole concept was he wanted to get this concept of meditation outside the monastic walls into the into the lives of folks like us who were running on the street all day long and and his suggestion is which I followed still to this day is just like 15 to 20 minutes in the morning and 15 to 20 minutes in the evening and then if you put to yourself getting stressed up just taking a deep breath relaxing and repeat that mantra for a few minutes and just sort of backing away from that scene and then going back in after you sort of caught yourself that way so I know it hasn’t grown two hours on end or whatever else I read a book about the Dalai Lama and Bishop Archbishop Tutu and I saw that both of them were Dalai Lama was meditating three to five hours early in the morning and Bishop tutu was praying two to three hours every morning I just have never gotten to that point [Laughter] I’m laughing there’s a thing and I wish I could remember where I heard the saying but from a religious standpoint someone was you know at the end of the night and they were lamenting they were going through a crisis and so they were you know praying like you know how come you won’t listen to me you won’t enter me and I’ve done all the right things I’m supposed to do and and so the creator of Jesus at this point said well you know you pray to me in the morning or you pray to me in the evening and then you don’t know anything about me you don’t think I exist during the day I’m with you out the whole day so well yeah I mean my experience has been that this disciplined practice of sort of on the book end of the days is just it does increase my awareness of something beyond me and beyond what I’m doing I mean not all the time i i certainly still get obsessed at times i get preoccupied in whatever but becoming more aware of a situation of when i am doing that and i’m able to back away some so but yeah i mean you just can’t just I’m blocking out these 20 minutes and then not even trying to be aware I’m coming across and where my situation or where I am and the like and aware of other people around me so you know I’m not a theologian or pastor any things I probably don’t understand all all I’m supposed to own that but it certainly was helpful to us and I didn’t know that what surprised me about as we would spend this time in meditation is I I sensed an intimacy just a nonverbal intimacy growing between Martha and me that we had not experienced in the 25 years of our marriage at that point and that was that was that was very meaningful very very important from there you know I think he just have an innate instinct that Martha was sensing that same thing as well she never talked to me about it well I’m able to talk to him too about that but I sensed that that was there as well oh listen I’m sorry go ahead no Carlin I was just going to ask you real quick in in you know the 17 years that you were you know dealing with it in your wife did you are you aware of any statistics as far as how prevalent is with the men as opposed to women yeah I like the Alzheimer’s Association has a lot of statistics if anyone is interested they can go to that they have a button you get to their statistics guys but those diagnosed with Alzheimer’s two thirds or women Wow you know that done it don’t ask me why I but that’s that’s what it is right now if it was and I do think one of the things women are more prone to be caregivers whether someone is sick or not but I mean they’re the ones you watch that the children making sure they’re doing all eyes it doesn’t side that could bear well the stress from that could very well be a factor one of the things I haven’t really made clear right now is a lot of the focus has been on trying to find a cure for Alzheimer’s and the focus has been on the person who’s living with Alzheimer’s the disease itself but right now the burnout rate among the caregivers of those with Alzheimer’s family caregivers the burnout rate is just rampant and there’s no statistical information that I’ve seen I’ve certainly seen some anecdotal information where the caregivers often may die before the person they’re caring for and just because of the distress if you if someone has not been around the person with Alzheimer’s they probably just can’t understand what that stress is but I mean emotions just can turn on a dime you can expect you’re going to be going in one direction and you wind up going in another direction and you just got it I mean after a while I just have to get to a point where realize that you know I really need to step into Martha’s room I need to stop trying to make her correspond with my world and the world as we have been living at it I need to step into her world and try to understand what she’s communicating she was able to talk for the first two three years but the third year or so it was still talking but not making a lot of sense so I just the timeline escapes me but after a while Martha was just not able to talk at all and so you just there’s a lot of instinctive kind of stuff that you have to be attend to and have be willing to be attuned to and so it’s just there it’s a very cliche kind of saying that anybody’s been around caregiving knows it’s just but if you’re really going to take care of your loved one you’ve got to take care of yourself you’ve got to get your exercise you’ve got to get a break and you’ve got to be able to step away for a while that doesn’t mean that you’re ignoring and that you’re not responsible but it’s being responsible to give yourself a break and that was that was one of the things that two older children gave me it was the best gift I had during these 17 years after they got home from graduated from college David and Rachel came to me and just said daddy we want to give you a weekend a month on where you take off Friday afternoon after work and then come back in Sunday afternoon and I jumped on that offer quick I mean that I wound up I wound up going to a monastery where it was quiet I could dip I could I could gripe the orange trees up there at the monastery where I was I could go walking read write my journal whatever and just not have to be strictly focused on what’s going on with Martha right now but that was tough on the kids I mean they had to step into a role reversal with their mother and that’s just that’s a hard thing to do they were in their early to mid-20s at that point and it was but it sure was helpful to me it’s just this other a lot of things that a caregiver needs to think about doing but we just my experiences well I I’m I’m responsible guy I can I can do all this myself I can take care of this and you I mean I got chard one time too many before I finally said I’ve got a I’ve got to have some friends helping here I’ve got to have some family helping here I’ve got to get a pay a caregiver to come in while I’m at work and be with Martha during the day it’d be you if you can learn that lesson early rather than later on like I did you’ll be a lot better off in terms of asking friends to help and if someone offers to help not say not be polite and say no you don’t need to do that thank you very much if someone offers to help say okay what can we work out here and bring them all forward and just get that kind of help as much as you can absolutely and so you were talking about women being the majority of people that get Alzheimer’s and did I don’t know if you knew that men are the are higher number of getting Parkinson’s disease I do not know I would have the same that yeah there’s a colleague that owns a home care company and all of her men that that had you know she sends caregivers out to they all have Parkinson’s and all the people that have Alzheimer’s are women I mean it’s not that cut and dry but i representative numbers are definitely there why do what why do you think that is on our practices any explanation it’s just more of the I think it’s more of the motor skills in that you know guys are usually traditionally with their hands and you know throughout life and so that could contribute to it one one school of thought for Alzheimer’s is in again you know asterik by the statement here so hope we don’t get any calls from is is that from FDA or anything like that but my friend she used to be a pharmaceutical sales rep in the 90s and in the 90s there was a lot of pushes from the industry that I won’t name so we don’t get flagged but there was a huge push in the 90s for cholesterol pills and when people were taken out of cholesterol pills unfortunate side-effect was the actual extra oxygen or water liquid that keeps the brain healthy was actually drying out and so there’s a school of thought that it exacerbated and brought on Alzheimer’s well you know after going through 17 years obvious I wound up writing a book on our experiences da and I didn’t think about my kids ask me why I decided to write the book and I just it was not on my mind going through that but I felt like I learned so much and had so much sort of interesting experiences through this Odyssey that it was worth just trying to explain it and I’m a journalist my background and an editor and journalist and so I don’t know if you mind my mentioning the book and I do none of us it’s called a path of the field how hope love and joy can found this on boundless in a maze called Alzheimer’s I’m paths revealed and it can be found on you can buy from any bookstore order it from an in book store I probably don’t have them stock but Amazon would have in stock or whatever else if anybody’s interested and it just really gotten excellent feedback on it had been pretty strong sales and so just I passed that along to anybody who’s interesting and I also have I’ve been writing a blog since September of 2015 just laying out experiences and my learning experiences through this and that’s on Carlin Maddox comc ARL en ma D Dux dot-com and so it’s if somebody wants to sign up and follow my post on that that’s no charge on that so just be glad to have anybody who’d be interested that yes absolutely so let me ask you with the with regards to the caregiver burnout I personally lost the sister to suicide two years ago and initially like most people well you know you have all these questions and then I started finding these support groups that was really helpful and as our numbers continue to grow with Alzheimer’s have you done that route or have you been a resource now in addition to your book of going to some of these groups because you have so you have 17 years of the experience that people can actually draw on yes but Martha was diagnosed in 97 there was uh I asked our neurologists about a support group and he said I know of only one here in st. Petersburg and he disturbs us from discourage me from getting involved in it he said you know the the folks who are in that support group are dealing with a spouse who isn’t just the late last stages of Alzheimer’s and I think you would find it more depressing than you lived helpful and so I never never did check that out but there were not a lot of support there were just not many support groups at all today there is just a lot more support grits around enough I had the opportunity to just talk and a variety of support groups church groups then interviewed on a number of radio programs and like with you guys here on this podcast so yeah I’ve had that kind of opportunity and just been able to get the feedback from a number of people of how they’re dealing with situations like this and I’ve got one good friend up in Nashville he’s been in now in the twelfth year of caring for his wife and he’s been involved and just an excellent support group from the get-go this and which is being led by a doctor which is excellent and it’s just been very beneficial to him so it just depends on where you live as to whether there would be in a good support groups out there my suspicion is that the more supportive more support groups will be in the larger cities or towns then just figure out in the rural area there may not be so much in terms of talking about the issues how did this work for you and how did that work and and just getting that kind of a feedback so I mean are you saying that you’ve been involved in a family suicide support group or are you talking about just four yes yes and I’m in and what I’m saying I’m saying two things one one thing that I really appreciated was the human element so you can kind of go to ask these people these are real people and so but the other side was since we’re all connected online now you have the Facebook groups and such so you’re actually speaking with people across the world and so you’re kind of connected and that in that regard and so I know on some of the boards on Facebook there are moderators that kind of echo what your what you were talking about when you had spoken with your doctor that they kind of monitor if you’re going to go down that rabbit hole of depression so it doesn’t happen it’s more of you know let’s kind of keep it light in the fall play on the same page so like right for a number of subject matters I just found the group’s helpful that’s you’re absolutely right honestly I mean you just no question about and I’m sorry to hear about your sister and they just it that’s a tough she older or younger than you not yes she was younger okay yeah in that and that actually kind of goes into my next question because she was she was in Spain right she lives over there and so you know the question like I was asking you initially will war were there early signs and someone not living that far away you don’t talk to them everyday you don’t see him everyday and so earlier in the podcast we were talking about you know children having every hour of the day managed and we kind of need to go back to letting them relax and have a routed and so Mike my question to you is do you feel like we’re going to go back with families too because with with historically family kind of stayed together or they lived across town you know maybe the jobs weren’t there in certain cities so now you have family that’s all over the globe so they’re not together and maybe that would kind of balance out this caregiver burnout because there’s only usually one other family member that could deal with someone going through Alzheimer’s or anything else yeah there are a lot of situations where one siblings say would be taking care of a parent with dementia or Alzheimer’s and other siblings are living elsewhere and they come into town to visit and then suddenly they become critics you’re not doing this and you’re not doing that and so that could be that could be a very tricky kind of the situation and feelings can get hurt real quick and it’s just each family’s got to got to figure it out in terms of if so if we want someone to be in charge the one who’s local then we need to let them be in charge and then please honor that and and I would say this in terms of our three children have Tuesday living in here one in Tampa one sick Pete and and then a daughter up in the DC area I’m not sure they would be as close as they are right now that they would have each other’s back like they do had they not going to do this and nobody wants to go through this to have families get along with each other but that’s that certainly was a I think has been a very positive outcome out of a very tragic kind of a situation and so you know it’s every family’s dysfunctional what can I say that’s what everyone move away right here like I got to get out of town depends on the degree of dysfunction just pray about anyway yeah yeah it goes back to what you were saying earlier Karl in about a resentment and so you’re saying well maybe women have it more because you know this used to be in the caregivers and and they have so much stress associated with it so they have this resentment that they don’t usually voice and if we’re using this whole it takes a neighborhood or it takes a community to raise a child if if there were other people around just in the rearing you know maybe that resentment wouldn’t be there maybe we would see more signs you know it’s this really in that line okay for attacking I can connect with us quite that tightly I mean I had my own share of resentment one in in terms within the family that I grew up in but also just getting resentful that I was having to spend this much time taking care of Martha and I just I had to learn to let that go and it’s not an easy thing to do it’s certainly a lot easier just to say talk about it than it wants to do it but yeah I mean it’s just just growing up there’s I don’t know how we do a do a major reshift and our culture but it’s just kids are either as you’re talking about they’re totally occupied of their own they’re on an iPad or watching the TV or something else just it says I’m there’s not as much reading time that’s going down where which is a very quiet kind of time that you just by yourself and reading that’s say to be a lot more limited today but certainly parents are very reluctant to let their kids just go out and wander the neighborhoods and and when I was growing up I’m 73 now so that’s a different generation for you guys but not equal when you’re growing up just I can go all over town and just a greater that’d be back such as such time and then generally and it’s just there was no no kind of an issue in those days so I mean our our son David has three children who were 12 down to 6 and a daughter rachel has two children who we were 7 and 4 and they’re just they’re dealing with different issues and when they were growing up and when we were having to deal with them oh sure yeah I didn’t know I asked Carlin I don’t know in that sense if we are aware of the rates of Alzheimer’s in you know globally like in other countries and did you at any time did you maybe go to the phase of looking at treatment like how other countries deal with treating it and looking for answers outside of the United States I did do some exploring there I didn’t find out a lot of information I was reading about a Harvard doctor neurologist who spent time in China and just talking about that experience but it wasn’t directly related to Alzheimer’s I mean I was I was having to there just weren’t a lot of books out on Alzheimer’s at that point so I was going around in circles a lot just trying to understand from as many different angles so to be specific and my answer I didn’t find any anything that people were coming up with answers about Alzheimer’s that we haven’t come up with here and the states David’s the I forget the number but it it seems to be it’s just massive if they’re if they’re five to six million living with Alzheimer’s here I think Worldwide’s and I just don’t home it it is it’s something like fifty million worldwide with Alzheimer’s so it’s just a massive problem that’s not just not just identified with our Western culture here in the United States boom so when you’re talking about Alzheimer disease I mean it’s memory loss there’s a big cognitive decline and you talked about riding your bike and being around town and reading and things like that and with with technology there’s more of a reliance I’m guilty of it too so you know I’m not standing on any sub box where they’re the over reliance on my Alexa or my you know Google assistant and you’re not using you’re not using your typical brain exercises that was probably used more often so do you think not exercising your mind as usual like you’re supposed to exercise your body could also contribute to deteriorates that’s part yeah that’s my gut feel I mean I mean just think about it if you had to add a string of numbers right now how would you do it you’ve been with a calculator that’s right and you wouldn’t even spend time going down the first row and coming up in second row and then the third row and the fourth row I mean and that’s just that’s just a different I mean I I don’t know what’s happening in the schools right now I don’t know if they’re just permitted to use calculators or if they have to do multiplication by here by in their head and adding in their head or whatever else but that could very well be in this compare well be a problem I just we’re just speculating here guys sheriff forums in terms of one of the contributing causes it I mean I read they’re just been scores of clinical trials relating to Alzheimer’s a hundred two hundred comes in that range and Martha was in an experimental trial whatever issue right after she was diagnosed and none of them have produced anything that what they produced is we know that this doesn’t work so we won’t do that anymore but you know I read in the paper or reading a magazine about this breakthrough or whatever else as far as resolving the whole issue Alzheimer’s and I looked down at the very bottom in the fine print well this is still at the mouth stage okay all right just let’s let’s put headlines out there whenever there’s really something substantial yeah anyway that’s that’s just sort of Nadia grout now terms okay I think money that’s fine I think the other answer to that is I’m not sure if that’s actually going what happened on a grand scale now the way technology is going there’s more of a proclivity if you will to go into personalized medicine and so they are using technology to find those indicators maybe not the apoe4 the image in that gene associated with Alzheimer’s but as we continue on it seems like your Alzheimer’s isn’t like my Alzheimer’s and the treatment will be different so are you see have you seen any of that in your research with personalized medicine no I haven’t but I made the point that you’re making is everybody’s situation is definitely just this friend over here has cancer another friend over here has a different form of cancer and it’s just right that’s that’s what makes it’s such a variable here but no I I haven’t gotten that deep into the weeds on that right now now when when someone diagnosed with Alzheimer’s obviously you’re you’re not obviously prepared for it especially early onset Alzheimer’s but you highlight that there’s something that we learned in first grade that can help us take care of a parent or spouse or loved the one with a long-term illness like for you to talk a little bit about that yeah I mean this is something I think everybody when they’re being told how to get across the street just to stop look and listen and it was just very important for me to stop when Martha was trying to communicate something to me when she was not able to talk I just rather than stated rather than be distracted I just needed to stop and focus in on what she was trying to tell me and just and just pay attention and and and just worked through that to the point where she is just not as frustrated this as she was getting today the one of the things that was just exhale it’s just a extremely great gift if you will about 18 months after Martha was diagnosed and Martha was a very and then all over life had been a very confident woman but she became deflated after the diagnosis and and just the confidence had pretty much anticipated become much more passive and her outlook our sister-in-law encouraged Martha to get into a watercolor painting class and and it was just amazing Martha had never been into painting she had always been an outdoor girl like tennis like swimming dancing hiking that kind of thing and I was surprised when she agreed to get into this class but over the course of two years is just amazing some of the stuff she came out with her coloring was just bold vivid different unique kind of kind of thing that I just hadn’t I didn’t know that was possible and Martha’s confidence just reimbursed during that time and she became reengaged at least I mean I’m at the time she would say let’s go to the let’s go to the craft shop and she wanted to go there and she looked through all the paint brushes and the paints and the paper and everything and making decisions and that was just wonderful to behold coming off of the just the depressing kind of time that we’ve been going through so it’s it’s important to what is it that it’s important to look for so the some of the small gifts some of the things that you your spouse or your parent just may be getting their attention and there was a my neurologist pointed the Martha’s neurologist pointed me to a to a YouTube for this older gentleman african-american was just into a deep deep kind of Alzheimer’s or dementia just nothing would get his attention it turns out that he had a music music background and someone wanted they want to add the nursing home where he was one of the attendants picked up on Barris and so started playing the piano with him in sudden this man started waking up and getting alert it turns out that in his earlier life he had been in a band and and some of his band members all older and retired at this point got word that he was interested in doing some music some more and they came together and the guy who started playing the piano again and we’ve just been totally out of it so it’s really important to try to seek out those things that will just allow that inner person to re-emerge however however that could happen those are really good points curling it makes me think of before our baby’s born how parents will play music to the baby you know supposed to increase their intelligence and as you’re saying later in life you’re kind of reminded of the simple things and other thing I’ve seen online and in local groups here you have a lot of adult coloring groups and so you’re thinking wow we’re going to get together in color but it’s kind of like you said you’re taking a step back and just remembering the simpler things and it it gives you all those endorphins go off that you never would have imagined exactly exactly I mean and that I can tell you as as Martha’s caregiver that was a great relief to me it was great for Martha but it was also a great relief to me and just that some of my pain some of her paintings up on my website under the the about button if anybody’s interested in seeing it and it’s just pretty incredible kind of stuff that came out and that that just lasted about two years for her and she lost interest in her and yeah sight it faded away yep yep and so with your book if you want to take this time we are at the top of the hour so I love for you to highlight your book one more time where they can get it and your website where they can follow your blog sure the name of my book is a path revealed how hope love and joy found us deep in a maze called Alzheimer’s and you can find it on Amazon under that title or under my name Carlin Maddox CA rlan ma T Dux and that is my website as well it’s ww Carlene Maddox calm and you can sign up for my blog there or just check out anything else I’ve gotten going there and just be glad to have someone has to get my book and they have questions you can eat my email is on my website you can email me getting contact that way so yeah it’s just thank you very much for that opportunity absolutely well you’ve been in tuned to another episode of intrinsic motivation from a homies perspective this is Hamza and I’m David Carlin it was a pleasure speaking with you let’s stay in touch sir okay I appreciate it very much thank you David yes thank you okay thank you ready go bye bye thanks again for checking out another episode of intrinsic motivation from a homeless perspective podcast please check us out on our website at intrinsic motivation dot life where you can click on the speak pipe button and leave any suggestions for a future podcast that you like us to cover also check us out on our social media sites we have a YouTube channel Facebook page iTunes podcast in addition to stitcher and Google Play all under intrinsic motivation from a homeys perspective check you out next time have a great day you

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